Well, crap, y'all. My health is, as I fully predicted but had soooo hoped to be wrong about, going completely APESHIT, for lack of a better word, in the aftermath of that accursed ACTH Stimulation Test. Initially, the Lasix did a totally awesome job of taking down the swelling and restoring me to my svelte normal self from the rotund, distinctly unjolly mess I had become. Now, not so much, and I'm wheezing and coughing up lots of wet clear ookyness, which the inhaler does not affect one whit so likely I am using my lungs as a dumping-ground for some of that extra steroid-induced FLUID RETENTION. I finally consulted with my nurse mother yesterday evening (o shut-up, to put it the way Black Hockey Jesus does, because he's way cooler than I am; I know that my kee-razy mother is far from the best source of medical advice even if she DOES have a Master's in Nursing, because she is old and crazy and hasn't been licensed in years and did I mention that she is CRAZY? But it was the 4th of July and apparently that is what I do when I am truly circling the drain, I CALL MY CRAZY MOTHER FOR MEDICAL ADVICE--it doesn't actually say so in that post but I called her, gasping, BEFORE I called the paramedics, because calling 911 just seemed so DRAMATIC, and I didn't want to be a bother, and then she informed me after telling me when to start and stop counting that my pulse was in the 120s, I sounded like shit, and if I didn't call some paramedics she WOULD, because SHE KNOWS WHERE I LIVE) and was informed that the dosage of Lasix Dr. UberEndo had called in was rather mild for my bodyweight and could safely be doubled, if not tripled, if necessary. So after consulting with Dr. Google (again, o shut-up, crazy mom+Dr. Google=one competent expert agreeing to whatever the current hare-brained scheme might be in my book, just as 4 oz applesauce=1 egg if you are baking vegan; might not be EXACTLY the same, but close enough that nobody is going to die over it), who concurred, I took a second Lasix and whooooo boy did I ever do some champion pissing! Not to brag or anything but, well, I don't gots much, y'know? So that was last night.
This morning I woke up very fat again after what was apparently a couple of hours of attempts at waking me on The Patriarch's part (yes, he slept over last night due to this malfeasance on the part of my lungs and I left the Door Club off the bedroom door because he very rationally and politely pointed out that if I was having breathing trouble I might not want to make it impossible for ANYONE to get into the room with me, should the need arise); he wanted me to be awake when Chicken Jane arrived since she knows he's not supposed to be here overnight, and because Chicken Jane doesn't know (even WITH her reading glasses on) which of the sixteen or so bottles currently in my pill trough is the Synthroid and when to shove that down my throat, and which is the generic Lasix and just far from my normal figure I might be and how many of THOSE to shove down my throat accordingly, and to remind me to put my ADD patch on and alternate sites since I am allergic to the adhesive and the skin will break down after more than one day of THAT, etc. Y'know, that is the kind of thing that gives me pause and makes me think very carefully when I contemplate dashing off into the sunset like a free bloody bird because of the negatives--no matter how manic or poorly-medicated that man is, he remembers to take care of me and will do so despite my every effort to thwart him, just as no matter how sick I am (unless I'm in a coma) I will get up and limp down the stairs to make the baby's formula, add the right amount of Miralax, and push it through the g-tube whether thon is crying and smacking at my hands in a fit of pique or not. Whatever the drawbacks, however loud and FUCKING INCESSANT the shrieking may be in either example, that's a whole lotta love to turn one's back on, no? But hey, we were talking about ME and my fucking lame-arsed lungs...
So yes, very fat this morning and constantly coughing up/clearing my throat of secretions, and while the "inspiratory" wheeze improved (temporarily) after a couple of hits off the old inhaler, the "expiratory" one did not, and that generally speaks poorly as to your lung function overall, so...crap. Here is where the shell-game comes in (because weekend medicine is good enough to stabilize you in an acute crisis but otherwise useless and sometimes even downright detrimental and a waste of time, money, and exposure to hospital pathogens). Do I:
* Stop drinking so damn much (water, Gator-ade, etc., not alcohol, just so we're clear)! Then my body wouldn't have all of that extra fluid to be dumping in stupid places like my lungs. Chart my I/Os, and don't be drinking even if I AM thirsty (because that's just Satan's Steroids talking, not REAL thirst) unless the Os are keeping up with the Is. Sounds like a plan! Except! Then my blood pressure might crash again (seems SLIGHTLY less likely given that steroid exposure jacks my BP waaaaay up into the normal and even high-normal range, but you never know), resulting in another Very Mean Paramedic experience and trip to Club Med (plus if you look at that Wikipedia article, low blood pressure will actually make you pee LESS, which I do NOT want). Which is exactly what I am trying to AVOID.
* Take a third Lasix. This might just jump-start things and get rid of the pesky pulmonary edema! If I take a Potassium supplement and drink Gator-ade instead of water, I might avoid the predictable electrolyte-imbalance issues and get away with it! TEMPTING! Except, you know, strictly speaking one shouldn't act on the advice of one's crazy mother and/or Dr. Google without checking with a trained professional. Who would want to have an actual LOOK at me. CURSES!
* Take a Mucinex; maybe this would help break up the junk in my lungs? Or maybe it would just mix spectacularly badly with at least half of my current prescriptions and up and kill me dead. Would require further research, to say the least...
* Actually consult a trained medical professional (i.e. suck it up and go to the acute-care walk-in clinic with my big box o'drugs and my bizarre medical history and most recent ER labs in-hand, and hope I don't get some total moron who starts spouting some kinda crap about asthma and inhaled steroids--that could end me in PRISON Club Med on the taxpayer's dime, because I think if anyone did that right now I'd brain them with my big box o'drugs). Pros would involve, well, actual pros calling the shots (in theory) and at least doing a white count (which since there is fluid in my lungs and my temperature hasn't been below a hundred in...days...might not be such a bad idea). Cons would involve the fact that very few doctors seem to understand the way my body reacts to steroids, the possibility if I was to become unresponsive of some IDIOT actually GIVING me steroids (because I am chickenshit and still haven't sorted out that damn Advanced Directive, I know, I KNOW), and having to have the "you DO know that painkillers are DEPRESSANTS and your lungs can't function optimally blahblahblah NO MORPHINE FOR YOU" talk, which yes, I have considered that perhaps the pain drugs are contributing to the problem, but people I just can't bear the pain without them. With them I am not pain-FREE (far from it!), but I can COPE. Without them, I dunno that I'm that interested in being here, so...yeah. The Nervous Wrangler knew about the respiratory issue when he prescribed the morphine, and said that as long as the Lasix was keeping that at bay don't worry TOO much, but...
BUT NOTHING! HA! In the time it has taken me to write this, two Lasix have brought me down to a smooshy-bellied but able-to-fit-into-Apple-Bottoms semblance of my normal self, and with hair and makeup I could probably pass for healthy, even! Nice try, Mr. Reaper, but WRONG SHELL. I'm sure we'll play again soon, since steroid-induced mayhem tends to peak around ten days (tomorrow should be FUN!) and not subside until it's been about two weeks, per TNW and my own personal (painful) experience. Tomorrow will, of COURSE, be a Sunday, which pardon my saying so but I do prefer a Sunday to a Saturday in the ER because you tend to get more non-Christian doctors and something in my Ashkenazic roots IS tempted to in fact scream "GET ME A JEW!" when wheeled into the ER, although my WASP half beats it into submission and my superego will take a Muslim or a Hindu or WHATEVER, even a Christian if they seem to have half a clue or ESPECIALLY if they are black. Nothing against the white Christians, just that I still hold the reverse-prejudice that in the American South, a Jewish or brown-of-any-extraction doctor is likely to be like, THREE TIMES as good as their WASP counterparts, simply because they HAVE to be to get past all of the inherent prejudice within The System, and probably much cooler to boot because they know better than to sweat the small stuff. If I open my eyes in the ER and see a black woman with "M.D." on her lab coat standing over my gurney I immediately breathe a sigh of relief and feel like things are going to be OKAY. Weird, fucked-up, illogical, and full of more fallacies than I am of syndromes, possibly, but true.
As always, I or Redzils or Wonder Woman or SOMEONE will keep you posted...oh and hey it's still very early and no viability scan yet but here at Doolittle we're ALL ABOUT the small victories...my sub-fertile friend Wonder Woman is, like, SEVEN AND A HALF WEEKS PREGNANT! GO WONDER WOMAN, GIT DOWN WID YER BAD OVULATING SELF, AND GO MR. WONDER WOMAN FOR POPPING OUT AT LEAST ONE SWIMMER WITH THE CORRECT NUMBER OF HEADS AND THAT ALL-IMPORTANT SENSE OF DIRECTION! WHOO, TITS! And now we ALL worry until she gets that scan next week (I THINK it's next week--if I'm wrong, dear WW, please don't hold it against me, I don't know when my own appointments are without checking the PDA and I didn't put yours in there because there's a fine line between close friendship and WEIRDNESS, y'know?)...In fact, today, #100, the final thing I am grateful for is my friend's good news; sure it could still go tits-up at any point, but isn't that true of pretty much anything? Congratulations, my friend.
Also, I posted something in the password-protected area last night; I would have said so then but wanted my N.B. to stand out for a bit...if you don't have the password then so far it's only because you haven't asked for it--feel free to e-mail Redzils and ask for it; I suck at keeping up with my e-mails but returned all of the ones from up until last night then and am going to go and check again now...after I pee again...ciao
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